What is the ped-DTC Registry?
The pediatric differentiated thyroid carcinoma (ped-DTC) Registry is a European initiative that collects clinical data on children and adolescents diagnosed with differentiated thyroid carcinoma. Because this type of cancer is rare, no single hospital can gather enough cases to fully understand the disease. By uniting data and expertise across Europe, the registry enables meaningful research, improves clinical care, and supports long-term patient outcomes.
The registry operates within EuRREB – the European Registries for Rare Endocrine and Bone Conditions, ensuring high standards of data quality, privacy, and ethics.
As part of the EuRREB network, the registry brings together experts throughout Europe to harmonize care, drive research, and create a stronger future for patients and families affected by pediatric thyroid cancer.
Discover How the Registry Works
Our stakeholders
Timeline – Towards European Collaboration
ETA-CRN symposium
Copenhagen, Denemarken
Initiative to collaborate at a European level in a network (prof dr. T.P. Links).->
Publication:
Dekker B.I. et al
How is care organized in European countries?
Working group ETA-CRN
Lebbink C.A. et al
Development of the first European guideline for the diagnosis and treatment of thyroid nodules and differentiated thyroid cancer in children.Â
    
Ped-DTC Registry
Clement S.C. et al
Initiation of a European registry collaboration in the field of pediatric thyroid tumors.
